Comments on: Autism and Terbutaline http://www.mindlessmommy.com/2007/04/autism-and-terbutaline.html Autism, ADHD, Anxiety and Siezures Tue, 09 Mar 2010 17:56:21 +0000 http://wordpress.org/?v=2.9 hourly 1 By: Leslie http://www.mindlessmommy.com/2007/04/autism-and-terbutaline.html/comment-page-1#comment-8410 Leslie Tue, 18 Aug 2009 06:47:28 +0000 http://www.mindlessmommy.com/2007/04/autism-and-terbutaline.html#comment-8410 My son is 12 and has been diagnosed with ADHD and speech difficulties (stuttering). He definitely stuggles with social interactions. I was on terb pump and complete bed rest from 26 weeks until he delivered at 35 weeks. My daughter is 11 and I took terbutaline orally from 24 week to 37 weeks. She has had significant speech delays, auditory processing problems and possible dyslexia. Is it related to the terbutaline? Is it from all of the vaccinations I was told would keep my child safe? Is it caused by gluten, yeast, allergies, cleaning products, pesticides? It's enough to keep me in front of the computer reading blogs from other concerned parents such as you - all searching for an answer. My son is 12 and has been diagnosed with ADHD and speech difficulties (stuttering). He definitely stuggles with social interactions. I was on terb pump and complete bed rest from 26 weeks until he delivered at 35 weeks. My daughter is 11 and I took terbutaline orally from 24 week to 37 weeks. She has had significant speech delays, auditory processing problems and possible dyslexia. Is it related to the terbutaline? Is it from all of the vaccinations I was told would keep my child safe? Is it caused by gluten, yeast, allergies, cleaning products, pesticides? It’s enough to keep me in front of the computer reading blogs from other concerned parents such as you – all searching for an answer.

]]> By: Leigh http://www.mindlessmommy.com/2007/04/autism-and-terbutaline.html/comment-page-1#comment-8385 Leigh Thu, 06 Aug 2009 16:19:34 +0000 http://www.mindlessmommy.com/2007/04/autism-and-terbutaline.html#comment-8385 While there may be a link, I look at my beautiful autistic terb child and feel blessed that they didn't miscarry at 28 weeks due to my preterm labor. Even if the terbutaline contributed to his autism, he's alive. Without terbutaline, he would have died. I was contracting EVERY 2 minutes and luckily went to the hospital quickly... While there may be a link, I look at my beautiful autistic terb child and feel blessed that they didn’t miscarry at 28 weeks due to my preterm labor. Even if the terbutaline contributed to his autism, he’s alive. Without terbutaline, he would have died. I was contracting EVERY 2 minutes and luckily went to the hospital quickly…

]]> By: Ameena http://www.mindlessmommy.com/2007/04/autism-and-terbutaline.html/comment-page-1#comment-8369 Ameena Fri, 31 Jul 2009 17:07:20 +0000 http://www.mindlessmommy.com/2007/04/autism-and-terbutaline.html#comment-8369 Hi everyone, My son is 3 1/2 yrs old and was diagnosed with PDD-NOS at the age of 2. I was on bed rest and on terbutaline for 12 weeks (IV) due to pre-term labor. I was given magnesium sulfate also. I truly believe there is a link because, not only my son, 2 of my cousins and my niece all have developmental delays and their moms were all on terbutaline (either by pill or IV). This is a very frustrasting thing to deal with but we must be strong. Just seeing my little man every day brings me joy! Good luck to all the moms! Ameena Hi everyone,

My son is 3 1/2 yrs old and was diagnosed with PDD-NOS at the age of 2. I was on bed rest and on terbutaline for 12 weeks (IV) due to pre-term labor. I was given magnesium sulfate also. I truly believe there is a link because, not only my son, 2 of my cousins and my niece all have developmental delays and their moms were all on terbutaline (either by pill or IV). This is a very frustrasting thing to deal with but we must be strong. Just seeing my little man every day brings me joy!

Good luck to all the moms!
Ameena

]]> By: Melissa http://www.mindlessmommy.com/2007/04/autism-and-terbutaline.html/comment-page-1#comment-8331 Melissa Sat, 11 Jul 2009 19:10:22 +0000 http://www.mindlessmommy.com/2007/04/autism-and-terbutaline.html#comment-8331 Hi Matthew, Thanks for the link, very interesting! Melissa Hi Matthew,

Thanks for the link, very interesting!

Melissa

]]> By: Matthew http://www.mindlessmommy.com/2007/04/autism-and-terbutaline.html/comment-page-1#comment-8325 Matthew Thu, 09 Jul 2009 18:32:11 +0000 http://www.mindlessmommy.com/2007/04/autism-and-terbutaline.html#comment-8325 Melissa, I am currently doing research on terbutaline and birth defects. I noticed you said you weren't sure when the link btwn terbutaline and autism first came up. Here's the earliest study I've found so far: http://jpet.aspetjournals.org/cgi/content/full/308/2/529 It's from November 2003, is about birth defects, and was cited by another article that explores the link w/ autism specifically. Thanks for sharing information. Mothers need to be informed of possible risks to make the best decisions. Melissa,
I am currently doing research on terbutaline and birth defects. I noticed you said you weren’t sure when the link btwn terbutaline and autism first came up. Here’s the earliest study I’ve found so far: http://jpet.aspetjournals.org/cgi/content/full/308/2/529

It’s from November 2003, is about birth defects, and was cited by another article that explores the link w/ autism specifically.

Thanks for sharing information. Mothers need to be informed of possible risks to make the best decisions.

]]> By: Melissa http://www.mindlessmommy.com/2007/04/autism-and-terbutaline.html/comment-page-1#comment-5932 Melissa Mon, 23 Mar 2009 05:00:50 +0000 http://www.mindlessmommy.com/2007/04/autism-and-terbutaline.html#comment-5932 Hi Nicolette, Congratulations on making it to 33 weeks! I do not remember my dosage at all, my daughter is now 5 and well - I've lost a few brain cells in the past several years hehe. I am not a doctor but from what research I've done (I'm also not a researcher, just a mom) - the link between autism and terbutaline is merely suggested but not conclusive by any means. There is actually no known, definitive cause of autism. The strongest "cause" of autism that I've read about is the genetic link - I know that in our family, that is the case. I was not on terbutaline with my son and he is on the spectrum. My sister was on a terb. pump with my nephew and he is the most neurotypical of us all. Best wishes to you as you near the full term mark. Warmly, Melissa Hi Nicolette,

Congratulations on making it to 33 weeks! I do not remember my dosage at all, my daughter is now 5 and well – I’ve lost a few brain cells in the past several years hehe. I am not a doctor but from what research I’ve done (I’m also not a researcher, just a mom) – the link between autism and terbutaline is merely suggested but not conclusive by any means. There is actually no known, definitive cause of autism. The strongest “cause” of autism that I’ve read about is the genetic link – I know that in our family, that is the case. I was not on terbutaline with my son and he is on the spectrum. My sister was on a terb. pump with my nephew and he is the most neurotypical of us all.

Best wishes to you as you near the full term mark.

Warmly,

Melissa

]]> By: Nicolette http://www.mindlessmommy.com/2007/04/autism-and-terbutaline.html/comment-page-1#comment-5931 Nicolette Mon, 23 Mar 2009 04:33:46 +0000 http://www.mindlessmommy.com/2007/04/autism-and-terbutaline.html#comment-5931 I am currently 33 weeks and on oral terbutaline every 3 hours. I am curious to know the dose of terb that others took. I have to confess, I am actually a Labor and Delivery RN and have never heard about the link. Though the doctors at my hospital on use the subcutaneous (shot) once or twice and then send patients home on Nifedipine. I personally go to a different hospital for care, and they send patients home on oral terb standardly. I have a follow up appt with my dr. on Tuesday, will definately try to convince him to change my medication. Any further information would be great. Thanks. I am currently 33 weeks and on oral terbutaline every 3 hours. I am curious to know the dose of terb that others took. I have to confess, I am actually a Labor and Delivery RN and have never heard about the link. Though the doctors at my hospital on use the subcutaneous (shot) once or twice and then send patients home on Nifedipine. I personally go to a different hospital for care, and they send patients home on oral terb standardly. I have a follow up appt with my dr. on Tuesday, will definately try to convince him to change my medication. Any further information would be great. Thanks.

]]> By: Melissa http://www.mindlessmommy.com/2007/04/autism-and-terbutaline.html/comment-page-1#comment-5749 Melissa Thu, 12 Mar 2009 00:50:25 +0000 http://www.mindlessmommy.com/2007/04/autism-and-terbutaline.html#comment-5749 Thank you for sharing your story Tiffany - what a sad story about the doctor receiving kickbaks and putting you on the terb pump. I am glad that your daughter is stabilized now - wishing you continued success with her epilepsy medication. Thank you for sharing your story Tiffany – what a sad story about the doctor receiving kickbaks and putting you on the terb pump. I am glad that your daughter is stabilized now – wishing you continued success with her epilepsy medication.

]]> By: Tiffany Klink http://www.mindlessmommy.com/2007/04/autism-and-terbutaline.html/comment-page-1#comment-5747 Tiffany Klink Thu, 12 Mar 2009 00:36:26 +0000 http://www.mindlessmommy.com/2007/04/autism-and-terbutaline.html#comment-5747 I just found your website, I had researched this years ago and had came up with nothing. I was administered terbutaline through a pump back in 1993 for preterm labor. I had also been given Magnesium Sulfate as well. My daughter is now 15, she was diagnosed with Aspergers/Autism early on. Five years ago she was also diagnosed with Epilepsy. The difference in my case is the Doctor had misdiagnosed me and decided to put me on the pump with this company called Tokos. After being on this for months and feeling frustration with my doctor, I went for a second opinion in my 7th month. My new Dr. took me off everything and I carried full term and his thoughts were that the other Dr. was receiving kickbacks from Tokos. Five years ago, my daughter had her first onset of epileptic seizures. My daughter went into cardiac and respiratory arrest, we almost lost her. I have always felt that there was some link between Autism and Terbutaline. I contacted several attorneys after my daughters near death experience because I wanted to make people aware of this and do something about the safety of terbutaline, but because my daughter lived, we had no case, pretty sad system that we live in. My daughter is stabilized with meds for her epilepsy now. Has anyone experienced anything similiar? No Autism or Epilepsy run in my family and I have 3 other children with no disabilities. Please educate people about this, obviously I am not the only one. I just found your website, I had researched this years ago and had came up with nothing. I was administered terbutaline through a pump back in 1993 for preterm labor. I had also been given Magnesium Sulfate as well. My daughter is now 15, she was diagnosed with Aspergers/Autism early on. Five years ago she was also diagnosed with Epilepsy. The difference in my case is the Doctor had misdiagnosed me and decided to put me on the pump with this company called Tokos. After being on this for months and feeling frustration with my doctor, I went for a second opinion in my 7th month. My new Dr. took me off everything and I carried full term and his thoughts were that the other Dr. was receiving kickbacks from Tokos. Five years ago, my daughter had her first onset of epileptic seizures. My daughter went into cardiac and respiratory arrest, we almost lost her. I have always felt that there was some link between Autism and Terbutaline. I contacted several attorneys after my daughters near death experience because I wanted to make people aware of this and do something about the safety of terbutaline, but because my daughter lived, we had no case, pretty sad system that we live in. My daughter is stabilized with meds for her epilepsy now. Has anyone experienced anything similiar? No Autism or Epilepsy run in my family and I have 3 other children with no disabilities. Please educate people about this, obviously I am not the only one.

]]> By: Nicole Petuya http://www.mindlessmommy.com/2007/04/autism-and-terbutaline.html/comment-page-1#comment-4973 Nicole Petuya Thu, 01 Jan 2009 03:59:54 +0000 http://www.mindlessmommy.com/2007/04/autism-and-terbutaline.html#comment-4973 I was also on a terbutaline pump for 12 weeks due to pre-term labor. My daughter was born at 38 weeks and was 4lbs 13ozs. Now she is two and she has hardly any words and we are taking her to PT and OT. She has not been diagnosed with autism yet but I am sure she has it, I have worked in special edication for 7 years. From doing some current research I have also found that many people think that autism is linked to magnesium sulfate and the Rhogam shot. I was also on both of these medications as well as the terbutaline. So I really have no idea what casues autism. I was also on a terbutaline pump for 12 weeks due to pre-term labor. My daughter was born at 38 weeks and was 4lbs 13ozs. Now she is two and she has hardly any words and we are taking her to PT and OT. She has not been diagnosed with autism yet but I am sure she has it, I have worked in special edication for 7 years. From doing some current research I have also found that many people think that autism is linked to magnesium sulfate and the Rhogam shot. I was also on both of these medications as well as the terbutaline. So I really have no idea what casues autism.

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