So Alexander is taking in mor calories – in the way of a nutritional drink. It’s calories though, right?
Here’s a copy/paste of a response I left on the Weight Loss Crisis thread:
Right now our interim solution is something called Boost Plus. He likes the vanilla and says it tastes like chocolate. They are 360 calories, have 14g of protein and a host of vitamins. He’s drinking one at breakfast and one at dinner now so we’re guaranteed 720 calories.
He was drinking them alongside a normal meal but now he’s dropping food and basically doing a liquid diet except for lunch. He’s regained a few pounds though – so we’ll cross the “eat more food, drink less Boost” bridge when he gets a few more pounds on him.
I’m also awaiting a referral to a pediatric GI doc for him. Which reminds me, I have to go to the lab to get the stool sample kit – that is so going to be daddy’s job!
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Glad to hear he’s getting some good caloric intake – no matter which way! We went through a hunger strike phase with Nick around the time he was diagnosed PDD-NOS. At the time we saw the specialist Nick was drinking 2 pediasures a day and eating (maybe) 1 small meal/day. VERY nervewracking! Monitoring his food intake practically became an obsession. It was the 1st thing I asked of any babysitter or at daycare, “how much did he eat today?”
I know you are not doing biomedical intervention, but thought I’d share our anecdotal findings… Our doctor did the blood testing for food allergies and Nick came back positive for gluten, casein and egg. Once we transitioned Nick to a GFCF diet, he ate. And ate and ate and ate. 3 regular meals a day. If we slip up and he gets something “off limits” I notice his appetite wanes for 2-3 days.
As Nick’s expressive language developed, one day Nick made the announcement, “I can’t eat those chicken nuggets, Daddy” as he pointed out the car window at the McDonalds as they passed, “They make my tummy hurt.” We were floored. Was he having GI problems due to the gluten and/or casein and he was unable to express verbally to use before?
Just wondering if you’ve considered a trial dietary intervention.
I’ll be praying the pediatric GI doc has some answers for you!